you don't even know (ashtherockstar) wrote in young_life,
you don't even know
ashtherockstar
young_life

Epidermolysis Bullosa Awareness

Debra is a charity to help kids and, if they live that long, adults fight epidermolysis bullosa. This is a horrible rare genetic disease that causes life long pain for whomever has it. Many children who are born with this disease die at a very early age. Epidermolysis bullosa is caused by a mutation or change in the genetic material of the egg or sperm. A very small amount of friction or impact with the person's skin causes blisters. This is because their top layer of skin does not form right and takes a very long time to heal. Simple everyday things leave them with these blisters, such as walking or bumping into a table. In severe cases, the blisters can occur internally, in places like their mouth and esophagus. It is such a painful and itchy disease that is so sad to see. Someone who used to be very close to me had it and it hurt me so much to see him in so much pain and to know that I could do nothing for him to ease it. Debra is the only non-profit organization for the cause of this disease. Even though it's rare, the people who get it still deserve a normal life. I believe that there isn't enough awareness about this disease. The program is great. My old friend who had it told me all about it. Debra gives each person with epidermolysis bullosa money in an account yearly for whatever they may need. They provide camps where people with this and other types of skin diseases can attend and have fun. They are also working their hardest at finding a cure for this disease. Debra is working toward a great cause.

Click on the hyperlink at the end of this to go to the Debra website to learn more. It's very interesting to learn about. They have stories and pictures of people who have epidermolysis bullosa to give you a better understanding of the disease.



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